COVID (TAGS: SARS FLU COVID19 COVID-19 COVID2 COVID-2) Collagen disorder people are at a higher risk for complications. Add a mast cell disorder to that. So what does one do? Knowledge and an understanding of the issue is key. This is a comprehensive article that might thwart the mis-association of COVID with the flu or unintentional ignorance about the benefits of herd cooperation to contain or slow it down. I really don’t think this is just for young people. There are many people out there who are not aware and would act appropriately if they knew. Knowledge is everything. I wish you all good health. https://www.newsweek.com/young-unafraid-coronavirus-pandemic-goo… Additionally, Life Extension, who were the first to create a supplemental cocktail for the HIV epidemic (and 3/4ths are still used today), put a very good article out: https://www.lifeextension.com/protocols/infections/2019-novel-co… And this article looks like it is currently being developed and updated as the date is 3/24/20: https://www.lifeextension.com/newsletter/2020/3/specific-nutrien… I know people find Vit D controversial. But folks do your homework. It modulates the cytokine reactions by affecting the macrophages. It’s the cytokine storm that causes the body to break down the lungs. It’s an over-the-top reaction of the immune system. 3/15/20 Adding this fantastic brief & concise explanation of COVID… quite good. Please pass on I know of several people who don’t understand fully why we need to join together to control this. Not doing so can affect critically ill people without COVID. https://youtu.be/jWMUBouaqb0

So the “convenient” thing here is that the biggest thing you can do to prevent getting the virus is also the biggest thing you can do to prevent spreading the virus to others: social distancing and handwashing. I can definitely see ways this might end up particularly bad for an EDSer, which is basically that a lot of EDSers have difficulty with hospitals for various reasons. But basically people should be extra good about hand washing and not touching faces and should do social distancing. Might be a good idea to make sure you have a good hospital plan.

I think this is going to be a difficult topic to get a lot of good information on because EDS and Covid19 are both things that are not particularly well understood. In general, though, this virus is definitely something to take seriously. One thing it is likely to do is put a lot of pressure on the medical system. So it is a good idea for all of us to do what we can to manage our health. In other words, think about how frustrating it can be, for example, if you are in the ER with something subluxed or dislocated and people aren’t familiar with EDS. A pandemic is not going to make this stuff better. So ultimately probably anything that could increase the likelihood of someone needing to go to the hospital increases risk in some ways, for example.

I would like to see general information about disability and the coronavirus, though. It seems likely that there would be some common themes that might be useful.

The bottom line is that everyone should be taking this seriously whether they have EDS or not, and it is worth thinking through how all your medical conditions might affect your risk and how you might prepare or do things to reduce risk. To conclude, wash your hands and don’t touch your face!